This was week one, and seven to go. Today is a really tired day,but the good thing is I’m hungry, and that is a good thing. I have taken it pretty much one day at a time. The real challenge has been the schedule Tuesday night after chemo I fell asleep at around 9:30 and woke up wide awake on Wednesday morning at around 1:00 am. I think what I might start doing if this keeps up I might start doing some work from home. There are so many things I can do that I don’t need to be in the office to do that I can get done early in the morning like that. I will keep you up to date, maybe things will be a little different next week.
Here we go all….Monday afternoon we start radiation and that will go all week and I will have chemo on Tuesday afternoon from 12:00 to about 3:00 or 3:30, and then a little break and radiation from 4:12, can’t figure out the weird appointment time, and should be out of there by 4:30 or so. I think about what other things I will be able to do like exercise a bit, or some kind of activity. I’m starting to feel like I dont’ do much and really want to do more things. Not necessarily work type things, just more things that aren’t, cleaning, laundry, or grocery shopping, it sometimes seems that’s all we do.
My attitude also needs to change a bit. I need to stop having cancer and start curing it. I have been sitting around here and having cancer, I haven’t been thinking about what I need to do for myself to help cure it. I think the pity pot started after they put the tube in and I’m really not liking it, the pity pot I mean, not that I am really in love with the peg tube either. I know I will have to work, but I really need to figure out how to manage energy, and get the most out of what energy I have, so I can get the things done that are my responsibility.
When I think about responsibilities, they are increasing, Getting to church, and my responsibility for my spiritual growth, I will need to keep many of my work responsibilities, my heath is going to be a top priority, even stuff around the house will have its place, and I hate to beat this horse to death but all these things hinge on me managing my energy levels and doing the things I can do efficiently that I can, grabbing rest when I need to rest and work when I can work.
I will work it out through a bit of trial and error. It’s just weird that getting sick like this has so much other stuff that goes with it, not that I didn’t think it would but you don’t realize how much.
Yesterday I was in a ton of pain and was complaining that it felt like the tube was pulling and the tail on the outside was too long and the stopper needed to come out a little bit. I called the doc at 9am they finally got back to me at 3pm, the nurse reviewed my complaints and the doc agreed it was too long on the outside. Well I don’t know how to adjust it, so the nurses were kind enough to wait for me, and adjusted the tube life is better, but the poking, proding, and pulling has set back the healing process a bit, but I will take this every day instead of where it was. Thank you nurses, I owe you big.
Today the incision still hurts, and I got the news that radiation starts on January 23rd. I’m ready for them to bring it on, and lets get it over with so I can go on with life again. This is a pretty short post but it’s all I got tonight, vicodin is knocking me out.
Well they inserted the peg tube today. Surgery was quick and they put me out and I woke up with the thing in my stomach, and a fair amount of pain. It seems to be getting a little better this evening and I will see how I feel in the morning to decide if I go to work or not. From here I keep it clean and flush water through it once a week to keep it working until I need it. Life goes on and I am one step closer to chemo, and radiation.
Well tomorrow they insert the peg tube, good thing they are putting me out and I will just wake up with it. For some reason this thing scares me more than radiation. I think it comes to something getting stuck in me and not taken out, also there is maintainance to it, and it seems like it would get in the way. Today was a dentist day had two fillings and it hurts. Friday I go back to the periodontist for scaling and root plaining on the top half and Tuesday for the bottom half, then hopefully we get cleared for treatment and we can get on with this, so it can end.
I started the day at the periodontist, I need to have a perio cleaning which will be done over the next two weeks and also have two fillings done before treatment starts. The good news is he doesn’t believe I will have to have any teeth pulled, that all can be saved. This afternoon Barbara and I met with the chemo doctor and he is talking about once a week and in the beginning of the week using chemo to make the radiation more effective. He read the PET scan and the tonsil has a mass of about 3 cm and the lymph node is about 4 cm, which he says is still early stage and he expects a full recovery. It’s an optiomistic view and I really appreciate it. He has also talked about ways of mitigating side effects by drinking the aloe vera drink and using a lidocaine mouth wash. I will do all I can to limit the side effects.
The upcoming schedule is Wednesday I will undergo an outpatient surgery to put in a peg tube (feeding tube) so if my throat gets so sore that I can’t eat I can be fed and keep up my strength. Friday will be my first perio appointment, and the following Wednesday is the second appointment, I will need to fit the regular dentist in there also to do the two fillings so we can get started on the radiation treatments, so we can get rid of this thing.